“They Just Don’t Get It”: Snapshots from Siblings of Children with Life Limiting Conditions

Using photovoice, this thesis investigates the lived experiences of siblings of children with life limiting conditions (LLCs). Using the participant-produced photos to guide the thesis, I present their stories in a way that will allow readers to visually understand what it means to be a sibling to a child with an LLC. This thesis dissects the various emotions that are experienced by these siblings every day and discusses their importance. It also examines the daily lives of these siblings and how they care for their brothers and sisters. This thesis challenges previous beliefs that having a sibling with a disability is always detrimental to the siblings' well-being. Additionally, I will challenge my own use of photovoice and discuss complications with the method. This thesis fills a gap in existing literature while showcasing the beautiful snapshots of these siblings' lives while challenging ableist narratives of sibling relationships.